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HCLF Community Roundtables
Community Roundtables are forums on Zoom providing peer-to-peer support to patients and their families. Each roundtable is moderated by HCLF staff, board members, or volunteers. We request respectful conversation and an open mind to ensure a positive environment for all participants. To encourage candid dialogue and welcoming environment, we do not share recordings of the roundtable meetings.
Community Roundtable: Open to All
The open roundtable is for everyone impacted by HCL. It is a no-judgement space for people with HCL and their families or support network to listen, ask questions, and help each other. We encourage anyone affected by HCL or the HCL variants to join these community roundtable discussions. This roundtable is held every two months.
What to expect: After a brief introduction from HCLF staff, participants will go into small breakouts to meet other members of the group and have adequate time to ask questions and share stories and experiences.
March 12th from 4:00-5:00 pm Eastern REGISTER >>
May 14th from 4:00-5:00 pm Eastern REGISTER >>
Community Roundtable: Small Groups
In addition to the open roundtable, we host small group roundtables to support specific needs, such as living with HCL variant, that can often get lost in the larger group setting. We hope you find a roundtable discussion that supports you wherever you are in your journey with HCL.
What to expect: After a brief introduction from HCLF staff, participants will go into small breakouts to have adequate time for questions and to interact with others.
HCL Variant (HCLv) Roundtable
The HCL Variant roundtable is a welcoming space for people with the variant forms of HCL, such as HCLv and IGHV4-34, and their family members to share experiences, ask questions, and support each other. HCL variant roundtables occur every two months.
Upcoming meetings
April 9th from 12:30-1:30 pm Eastern REGISTER >>
Women’s Group Roundtable
The HCLF Women’s Group roundtable brings together women with HCL to share experiences, ask questions, and offer peer-to-peer support. Women’s group roundtables occur every two months.
Visit our HCLF Women’s Group page.
Upcoming meetings
March 18th from 12:30-1:30 pm Eastern REGISTER >>
May 20th from 12:30-1:30 pm Eastern REGISTER >>
Mesa Redonda para la Comunidad Hispana y Latina / Hispanic & Latino Roundtable
La Mesa Redonda del Grupo Hispano y Latino reúne a pacientes y familiares de habla hispana para compartir experiencias en español, hacer preguntas y brindar apoyo entre pares. / The Hispanic and Latino Group Roundtable brings together Spanish-speaking patients and families to share experiences in Spanish, ask questions, and offer peer-to-peer support. We aim to create a safe and trusted space where everyone can freely express.
Sábado, 22 de marzo / Saturday, March 22
11:00 am - 12:00 pm (hora del Este) / Eastern Time
Clinical Trials Roundtable
The Clinical Trials roundtable is for people with HCL and their support network to learn about HCL clinical trials from other patients. During each roundtable, one or more patients who have joined trials will share their experiences and answer questions. We hope to raise awareness of opportunities to make a difference in HCL research.
Upcoming meetings
Stay tuned.
