HCLF Community Roundtables

Community Roundtables are forums on Zoom providing peer-to-peer support to patients and their families. Each roundtable is moderated by HCLF staff, board members, or volunteers. We request respectful conversation and an open mind to ensure a positive environment for all participants. To encourage candid dialogue and welcoming environment, we do not share recordings of the roundtable meetings.

Community Roundtable: Open to All

The open roundtable is for everyone impacted by HCL. It is a no-judgement space for people with HCL and their families or support network to listen, ask questions, and help each other. Open roundtable meetings can have 40 or more participants and are often lively! You are always welcome to listen in and ask questions when you’re more comfortable with the format. We encourage anyone affected by HCL or HCL variant to join these community roundtable discussions.

Stay tuned for the 2025 roundtable schedule.

Community Roundtable: Small Groups

In addition to the open roundtable, we host small group roundtables to support specific needs, such as living with HCL variant, that can often get lost in the larger group setting. In general, these meetings have 20-30 participants. If you’re new to the group, you are welcome to listen and ask questions when you’re comfortable. We won’t put you on the spot. We hope you find a roundtable discussion that supports you wherever you are in your journey with HCL.

HCL Variant (HCLv) Roundtable

The HCL Variant roundtable is a welcoming space for people with the variant form of HCL and their family members to share experiences, ask questions, and support each other. We encourage everyone impacted by HCL Variant to join our community roundtable discussions.

Upcoming meetings

December 4 from 3:00-4:00 pm Eastern Register >>

Women’s Group Roundtable

The HCLF Women’s Group roundtable brings together women with HCL to share experiences, ask questions, and offer peer-to-peer support. We encourage all women impacted by HCL from anywhere in the world to join this warm and welcoming group!

Visit our HCLF Women’s Group page.

Upcoming meetings

December 2 from 12:30-1:30 pm Eastern Register >>

Clinical Trials Roundtable

The Clinical Trials roundtable is for people with HCL and their support network to learn about HCL clinical trials from other patients. During each roundtable, one or more patients who have joined trials will share their experiences and answer questions. We hope to raise awareness of opportunities to make a difference in HCL research.

Upcoming meetings

Stay tuned for the 2025 roundtable schedule.

Family Support Roundtable

The Family Support roundtable is a welcoming space for family members, partners or close friends of people with HCL to listen and help each other, becoming stronger supports for their loved ones with HCL. We encourage anyone helping a patient with HCL navigate their journey to join our family support roundtable discussions.

Upcoming meetings

Stay tuned for the 2025 roundtable schedule.