Support for Patients with Hairy Cell Leukemia

We provide a range of support for patients and families, including webinars, in-person seminars, and an online patient community. We are also expanding an international patient data registry, an important platform to advance HCL research and address unanswered questions.

Webinars and Forums

Educational Webinars

The HCLF hosts regular webinars during which hematologists and researchers from HCL Centers of Excellence provide an expert overview of HCL diagnosis, current treatment and clinical trials. Learn more. >>

Community Roundtables

We have expanded our support programs for patients with a Community Roundtable series. Roundtables are moderated forums on Zoom providing peer-to-peer support to patients and their families. Each roundtable is facilitated by HCLF staff, board members and volunteers.

Learn more. >>

Patient Seminars

For over a decade, the HCLF has hosted a free full-day seminar, connecting patients and families with expert speakers and informative panel discussions, and unparalleled opportunities for networking with patients who have similar experiences. Learn more. >>

HCLF Women’s Group

We launched the women’s group in 2020 to help women with HCL build and strengthen their network of support, supporting each other through diagnosis and treatment. The group is led by board members and volunteers and hosts regular webinars and peer-to-peer support meetings. Learn more. >>

Program Calendar

Visit our program calendar to register for current webinars and forums.

Calendar >>

Outreach to Hispanic & Latino HCL Patients and Families

The impact of HCL can vary among patients and their families, including within the Hispanic and Latino communities. To better understand these differences and strengthen information and services, we are developing programs to support Hispanic and Latino individuals with HCL and their family members better.


HCL Patient Data Registry

The HCLF has developed and continues to expand an HCL Patient Data Registry to strengthen research in this rare disease. Please consider joining the registry!

Ask an Expert

Through our Ask an Expert portal, we provide facts, resources, and referrals to support patients in making informed health care decisions.

Due to website maintenance, the Ask an Expert portal will be unavailable March 15th - 25th.


Clinical Trials in HCL

Clinical trials are carefully controlled research studies that can help improve HCL treatment and quality of life for patients. You should discuss clinical trials with your healthcare team.

Online HCL Community

Whether you are newly diagnosed, have relapsed, or are in remission, it helps to connect with others who understand your experiences. Through our online forum, you can ask questions and learn from other people with HCL.

Visit our Digital Library

We fund promising research to strengthen our shared understanding of HCL, develop new treatments, and improve outcomes for patients. Many HCLF grantees have published their findings in leading journals, advancing knowledge of HCL and bringing us closer to a cure. We maintain an archive of published HCL research on our website.


Looking for assistance with co-pays or travel to appointments? In addition to our programs, we encourage those affected by hairy cell leukemia to seek the support they need, when and where they need it. There are cancer-related organizations that provide a variety of resources and information for patients such as financial assistance and help in navigating clinical trials. Learn more. >>