Hairy Cell Leukemia Patient Data Registry
Why is a Registry important for Hairy Cell Leukemia?
Hairy Cell Leukemia is a rare disease. Patients with HCL are diagnosed and treated by many different doctors around the world. This makes it difficult for researchers to identify common factors that may help them better understand hairy cell leukemia and find more effective treatments.
How will the Registry make a difference?
The HCL Patient Data Registry will help researchers study HCL in ways not previously possible given the rarity of the disease. The Registry will help researchers identify new trends in patient outcomes, discover previously unknown complications of the disease, and design clinical trials to identify new therapies.
How can you get involved?
More than 400 patients have already chosen to join the Registry and share their journey with HCL. To maximize the impact of the Registry, we need as many patients as possible to participate.
To participate in the Registry, we encourage you to complete the form below. A member of the Registry team at The Ohio State University will contact you to answer any questions you may have and further explain the enrollment process.
We maintain confidentiality and keep your information secure.