Online Community for Patients and Families

Connect, learn, and support other patients

This is an online community for patients and family members. Whether you are newly diagnosed, have recently relapsed, or are in remission, it helps to connect with others who understand your experience. Through this community, we hope you will ask questions, learn from other patients and share your own story.

How can you join the community?

You must register to participate and view the discussion. The button below will take you to the community platform registration/log in page.

Click “Not Registered” to create an account. Registration is easy. You will enter your first and last name, email address, user name and password. Your user name is the name that will appear in the community when you post or comment.

Once you’ve registered, you will be taken to the community platform.

You can browse the community using the categories on the right side of the page or by reading through recent posts to the left. Ready to post? Use the "Ask" space to ask a question or share a story. We encourage you to assign a category or categories to help other users find your post.

Want to change how you receive notifications? Click “Your Account” to adjust your settings and preferences. By default, you will receive email notifications when other users respond to your questions or comments. However, you can change this in your settings. You can also subscribe to categories to receive email notifications when there is activity in a topic that interests you.

HCLF staff will monitor the community to ensure a respectful and supportive platform for all participants. Inappropriate or disrespectful language will not be tolerated and individuals who abuse this platform will be removed. This community is for individuals affected by hairy cell leukemia to connect with others. Posts that promote products or businesses, whether or not they are health care related, will be removed.