Materials from this seminar will be posted online as soon as possible.

Please join us on October 9 from 4-5 pm Eastern (1-2 pm Pacific, 3-4 pm Central) for an HCL Variant Community Roundtable. Community Roundtables are moderated forums on Zoom providing peer-to-peer support for patients and their families. HCLF staff and board members facilitate these meetings.

The HCL Variant roundtable is a welcoming space for people with the variant form of HCL and their network to share experiences, answer questions, and support each other. We encourage everyone impacted by HCL variant to join our community roundtable discussions.

Register online. >>

Join us on October 7 for a Women's Group community roundtable. This meeting will bring together women with HCL to share experiences and offer peer-to-peer support. We encourage all women impacted by HCL from anywhere in the world to join this warm and welcoming group!

The roundtable will be moderated by HCLF staff and members of the HCLF women's group steering committee. You are welcome to bring your questions about your diagnosis or treatment journey with HCL. We request respectful conversation and an open mind to ensure a positive environment for all women.

HCLF Women's Roundtable

October 7, 2024 at 12:30 pm eastern (11:30 am central, 9:30 am pacific)

Register online >>

Sunday, September 29th - In person in Columbus, OH or remotely by Zoom

9:30 am to 2:30 pm Eastern

For over a decade, the Hairy Cell Leukemia Foundation has brought together patients with hairy cell leukemia (HCL) and their families to learn from the brightest doctors and leading researchers in HCL and to connect with other patients who have similar experiences. The HCLF has held the seminar in Houston, New York City, London (England), Heidelberg (Germany), and Chicago.

In September 2024, we’re excited to return to the campus of the Ohio State University (OSU), where HCL was discovered in 1958 by OSU hematologist and researcher Dr. Bertha Bouroncle.

REGISTRATION IS NOW CLOSED.

Join us on September 18 from 4 to 5 pm Eastern (1 to 2 pm Pacific, 3 to 4 pm Central) for a Community Roundtable open to all. Roundtables are moderated forums on Zoom providing peer-to-peer support to patients with HCL and HCL variant and their families. These meetings are moderated by HCLF staff and volunteers.

This roundtable is for everyone impacted by HCL. It is a no-judgement space for people with HCL and their families or support network to listen and help each other. We encourage anyone affected by HCL to join our community roundtable discussions.

Register online. >>

This meeting is in the past.

The HCLF does not share recordings of community roundtables in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

Learn more about community roundtables. >>

This meeting is in the past.

The HCL Variant roundtable is a welcoming space for people with the variant form of HCL and their network to share experiences, answer questions, and support each other.

We do not share recordings of community roundtables.

Learn more and register for upcoming community roundtables.

This meeting is in the past.

The HCLF does not share recordings of community roundtables in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

Learn more about community roundtables. >>

This webinar is in the past.

Materials, including a recording and transcript, are available here. >>

This meeting is in the past.

The HCLF Women’s Group roundtable brings together women with HCL to share experiences and offer peer-to-peer support. We do not share recordings of community roundtables.

This meeting is in the past.

The HCL Variant roundtable is a welcoming space for people with the variant form of HCL and their network to share experiences, answer questions, and support each other.

We do not share recordings of community roundtables.

Learn more and register for upcoming community roundtables.

This program is in the past.

You can view slides and transcript of this webinar on our website here. >>

This meeting is in the past.

The HCLF does not share recordings of community roundtables in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

Learn more about community roundtables. >>

This program is in the past.

This webinar featured guest speaker Dr. Robert Kreitman from the NCI-NIH. During the program, Dr. Kreitman outlined open clinical trials for patients with classic HCL and HCL variant.

You can view a webinar recording and transcript on our website here. >>

This meeting is in the past.

The HCL Variant roundtable is a welcoming space for people with the variant form of HCL and their network to share experiences, answer questions, and support each other.

We do not share recordings of community roundtables.

Learn more and register for upcoming community roundtables.

This meeting is in the past.

The HCLF Women’s Group roundtable brings together women with HCL to share experiences and offer peer-to-peer support. We do not share recordings of community roundtables.

This meeting is in the past.

The Clinical Trials roundtable is a welcoming space for people with HCL and their support network to learn about HCL clinical trials from other patients. During each roundtable, one or more patients who have joined trials will share their experiences and answer questions. Through these roundtables, we hope to raise awareness of opportunities to make a difference in research by participating in these trials.

We do not share recordings of community roundtables.

Learn more and register for upcoming community roundtables.

This meeting is in the past.

The HCLF does not share recordings of community roundtables in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

What are Community Roundtables?

Roundtables are forums on Zoom providing peer-to-peer support to patients and their families. Each roundtable is moderated by HCLF staff, board members, or volunteers. We request respectful conversation and an open mind to ensure a positive environment for all participants.

Learn more about community roundtables. >>

This meeting is in the past.

The HCLF does not share recordings of HCL coffee chats in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

What are HCL Coffee Chats?

HCL Coffee Chats are supportive group meetings for patients and their families. During HCL coffee chats, patients can share their stories and experiences and offer important encouragement and support to others. Coffee chats are moderated by HCLF volunteers, board members, and staff and promote respectful dialogue and connection. They do not include a slide presentation. These meetings are open to anyone, regardless of location, and are hosted on Zoom.

This meeting is in the past.

The HCLF hosts a quarterly webinar during which hematologists and researchers from HCL Centers of Excellence provide an expert overview of HCL diagnosis, current treatment and clinical trials. People with HCL and their families are encouraged to register, listen and learn about this rare blood cancer and their options. These webinars are open to everyone, regardless of location.

On February 29, 2024, Dr. Tim Call from the Mayo Clinic was our guest speaker.

You can view webinar materials on our website. >>

This meeting is in the past.

The HCLF does not share recordings of community roundtables in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

What are Community Roundtables?

Roundtables are forums on Zoom providing peer-to-peer support to patients and their families. Each roundtable is moderated by HCLF staff, board members, or volunteers. We request respectful conversation and an open mind to ensure a positive environment for all participants.

Learn more about community roundtables. >>

This meeting is in the past.

The HCLF does not share recordings of HCL coffee chats in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

What are HCL Coffee Chats?

HCL Coffee Chats are supportive group meetings for patients and their families. During HCL coffee chats, patients can share their stories and experiences and offer important encouragement and support to others. Coffee chats are moderated by HCLF volunteers, board members, and staff and promote respectful dialogue and connection. They do not include a slide presentation. These meetings are open to anyone, regardless of location, and are hosted on Zoom.

This meeting is in the past.

The HCLF does not share recordings of these meetups in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

What is the HCLF Women’s Group?

The HCLF Women’s Group provides peer-to-peer support to women with HCL and their families. The group is led by a steering committee composed of women with HCL, HCLF staff, and board members. Meetings are held throughout the year for women, including roundtable discussions and occasional webinars on topics selected by the steering committee. These meetings are open to all women impacted by HCL anywhere in the world!

This meeting is in the past.

The HCLF hosts a quarterly webinar during which leading hematologists and researchers from HCL Centers of Excellence provide an expert overview of HCL diagnosis, current treatment and clinical trials. People with HCL and their families are encouraged to register, listen and learn about this rare blood cancer and their options. These webinars are open to everyone, regardless of location.

In November 2023, Dr. Robert Kreitman from the NIH was our guest speaker.

You can view materials from this webinar on the HCLF website here. >>

This meeting is in the past.

The HCLF does not share recordings of regional meetups in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

This meeting is in the past.

The patient seminar is an annual hybrid meeting hosted by the HCLF. In 2023, the patient seminar was held in London, UK. Some patients and their families participated in person in London and others joined by Zoom from around the world. Dr. Claire Dearden and Dr. Dima El-Sharkawi, both from the Royal Marsden Hospital, spoke to seminar participants and answered questions.

Materials from portions of the seminar are available on the HCLF website here. >>

Please note: In addition to slide presentations from Drs. Dearden and El-Sharkawi, the seminar included a panel discussion. A recording of the panel will not be posted.

This meeting is in the past.

The HCLF does not share recordings of HCL coffee chats in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

What are HCL Coffee Chats?

HCL Coffee Chats are supportive group meetings for patients and their families. During HCL coffee chats, patients can share their stories and experiences and offer important encouragement and support to others. Coffee chats are moderated by HCLF volunteers, board members, and staff and promote respectful dialogue and connection. They do not include a slide presentation. These meetings are open to anyone, regardless of location, and are hosted on Zoom.

This meeting is in the past.

The HCLF does not share recordings of these meetups in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

What is the HCLF Women’s Group?

The HCLF Women’s Group provides peer-to-peer support to women with HCL and their families. The group is led by a steering committee composed of women with HCL, HCLF staff, and board members. Meetings are held throughout the year for women, including roundtable discussions and occasional webinars on topics selected by the steering committee. These meetings are open to all women impacted by HCL anywhere in the world!

This meeting is in the past.

The HCLF hosts a quarterly webinar during which leading hematologists and researchers from HCL Centers of Excellence provide an expert overview of HCL diagnosis, current treatment and clinical trials. People with HCL and their families are encouraged to register, listen and learn about this rare blood cancer and their options. These webinars are open to everyone, regardless of location.

In September 2023, Dr. Kerry Rogers from the Ohio State University was our guest speaker.

You can view materials from this webinar here. >>

This meeting is in the past.

The HCLF does not share recordings of HCL coffee chats in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

What are HCL Coffee Chats?

HCL Coffee Chats are supportive group meetings for patients and their families. During HCL coffee chats, patients can share their stories and experiences and offer important encouragement and support to others. Coffee chats are moderated by HCLF volunteers, board members, and staff and promote respectful dialogue and connection. They do not include a slide presentation. These meetings are open to anyone, regardless of location, and are hosted on Zoom.