The Hairy Cell Leukemia Foundation (HCLF) is the only nonprofit organization in the United States dedicated to hairy cell leukemia (HCL) and the only HCL-focused organization with an international impact. With the leadership of patients and families, the HCLF has made extraordinary strides in research since its creation in the 1980’s and provided information and support to people around the world. >>
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The HCLF sends a regular e-newsletter with information about educational and peer-to-peer support programs as well as updates about new research and publications in HCL.
Find Information and Support
We provide education and support for patients and families, including webinars, referrals to HCL Centers of Excellence, an online patient forum, information about clinical trials, and much more.
Register for Programs
We host educational webinars, peer-to-peer forums, and other meetings throughout the year. HCLF staff or volunteers facilitate these meetings to empower patients with evidence-based information and help them build a strong network of support.
View Archived Programs
Did you miss a webinar or expert presentation or want to revisit content? We archive recordings and transcripts from most educational programs for patients.
Visit our Digital Library
We fund promising research to strengthen our shared understanding of hairy cell leukemia and improve outcomes for patients with this disease. Many research grantees have published their findings in leading journals, advancing knowledge of HCL and bringing us closer to a cure.
Find an HCL Expert
We have developed a network of HCL Centers of Excellence where healthcare professionals are working to advance understanding and improve patient outcomes. We encourage patients to seek treatment at these centers and we frequently turn to these experts for assistance.
Join the Patient Data Registry
We have developed an international HCL patient data registry to help researchers identify new trends in patient outcomes and design clinical trials for new HCL treatment. We need as many patients as possible to participate to maximize the registry’s impact.