The Hairy Cell Leukemia Foundation (HCLF) is the only nonprofit organization in the United States dedicated solely to hairy cell leukemia (HCL) and the only organization with an international impact. We seek to improve outcomes for all patients with HCL through research, advancing knowledge about HCL among hematologists, and providing educational resources to everyone impacted. With the leadership of patients and families, the HCLF has made extraordinary strides in research since the creation of the Foundation in the 1980’s and provided programs and support to countless people around the world.
Sign up!
The HCLF sends a monthly e-newsletter with information about educational and peer-to-peer support programs as well as updates about new research and publications in HCL.
Find Information and Support
We provide education and support for patients and families around the world. We respond to patient questions and make referrals to hairy cell leukemia experts and clinical trials. We provide educational webinars and forums for patients to learn about hairy cell leukemia treatment and research. Visit our patient support page to learn more.
Register for Programs
Throughout the year, we host informative webinars and remote and in-person forums for patients and families. Many of these programs include a presentation and discussion with experts from HCL Centers of Excellence. HCLF staff, board members, or volunteers facilitate these meetings to empower patients with evidence-based information and help them build a strong network of support.
View Archived Programs
Did you miss a webinar or presentation or want to revisit content? We archive recordings and transcripts from most educational programs for patients, which you can access on the HCLF website.
Visit our Digital Library
We fund promising research to strengthen our shared understanding of hairy cell leukemia and improve outcomes for patients with this disease. Many HCLF research grantees have published their findings in leading journals, advancing knowledge of HCL and bringing us closer to a cure. We maintain an archive of published HCL research on our website.
Find an HCL Expert
We have developed a network of Centers of Excellence for hairy cell leukemia where healthcare professionals are working to advance understanding and improve treatment. We encourage patients with HCL to seek treatment at these centers, and we frequently turn to these HCL experts for assistance with questions and to support patients.
Join the Patient Data Registry
We have developed a comprehensive hairy cell leukemia patient data registry to help researchers identify new trends in patient outcomes, discover previously unknown complications of the disease and design clinical trials for new HCL treatment. We need as many patients as possible to participate to maximize the registry’s impact.